Types Of Disease Registries
1 Types Of Patient Registries Download Scientific Diagram
Types of disease registries. Global Registry for COL6-related dystrophies. Facioscapulohumeral Muscular Dystrophy FSHD OAA Natural History Patient Registry Pediatric Cardiac Critical Care Consortium PC4 Pediatric Imaging Neurocognition and Genetics PING. Advancing Disease Understanding Treatments and Cures orgCoRDS or the Coordination of Rare Diseases at Sanford a not-for-profit research institution based in Sioux Falls SD.
Myotonic Dystrophy and US. Disease registries collect information on cohorts of patients with specific diseases eg cancer autoimmune disorders or Parkinsons disease or who. Cromley McLafferty 2012b.
Registry information for specific outbreaks such as the 2006 Polycythemia Vera investigation in Pennsylvania. And event-specific registries such as the 911 Health website developed in conjunction with the New York City Health Department. Disease-Specific Registries Disease-specific registries are designed to enroll all-comers of a rare disease into a registry.
For example the Gilda Radner Familial Ovarian Cancer Registry is a special cancer registry that collects cancer information from those families with two or more relatives having ovarian cancer. Global Registry for COL6-related dystrophies. List of registries by disease.
Congenital Muscle Disease International Registry. Types of Organizations Condition Registry Type Example Strength Example Limitation Professional society Heart failure Surgical care Hospitalization Procedure Hospitalization. Although registry goals and purposes vary when designed with the right approach and built with the right analytics technology they can measurably improve care.
Target Disease Registries Our Experience Building a Disease Registry Amyotrophic Lateral Sclerosis Hypertension Alzheimers Lower back pain Asthma Systemic Lupus Breast cancer Macular degeneration Cataracts Major depression Chronic lymphocytic leukemia Migraines Chronic obstructive pulmonary disease MRSAVRE Colorectal cancer Multiple. Different types of registries. Disease registries are centralized databases for the collection of information of specific diseases for example cancer registries Cromley McLafferty 2012b.
The New York State Department of Health maintains several population based disease registries for both chronic and communicable disease. National Program of Cancer Registries NPCR.
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As with conditiondisease registries drugdeviceproduct registries may also be considered clinical registries if they collect and report quality indicators back. Disease registries are centralized databases for the collection of information of specific diseases for example cancer registries Cromley McLafferty 2012b. Linking up the national registries. Different types of registries. NIH National Registry of US. International GNE Myopathy Registry. List of registries by disease. Although registry goals and purposes vary when designed with the right approach and built with the right analytics technology they can measurably improve care. For example ATSDR maintains disease registries for conditions such as ALS.
Japanese GNE Myopathy Registry. Cromley McLafferty 2012b. Different types of registries. Examples of these registries include those monitoring safety of implantable devices such as pacemakers or breast implants. Disease registries are centralized databases for the collection of information of specific diseases for example cancer registries Cromley McLafferty 2012b. Charcot Marie Tooth Disease. Japanese GNE Myopathy Registry.
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